Wednesday 12 November 2014

NOVEMBER GIFTS


We've been celebrating a birthday since my last blog post - my husband's. It was on Monday, but a Monday birthday (let alone a November birthday…) is always a bit boring, so we're planning a more elaborate dinner later on in the week.

A new check-up at the doctor's went ahead as planned last week and a new round of chemo was prescribed. This type of chemo medicine, called Lomustine, is not even commonly available in Norway and has to be applied for, but apparently it's promising in the treatment of brain tumours. The cycle consists of four pills that are swallowed as a single dose, then six weeks without, then a new dose, and so on. The drug is long acting in the body, so side effects may occur continually. Though I must say - as he's been through one cycle already - my husband seems to deal well with these lethal looking blue capsules. Also considering all the other medication he has to take!



He is very unsteady on his feet now, as his whole left side is dysfunctional - arm, hand, leg and foot. With the aid of a supportive arm from one of us, or his crutch, or his wheelchair, he is still able to stay fairly mobile. But because of the reduced functionality he had a drop-foot brace fitted a couple of weeks ago, and we drove off to pick it up yesterday on the other side of town. It's placed in the shoe (it has to be a shoe with a little extra room) and fixed around the leg, and it's meant to lift the front part of the foot automatically. It's brilliant, but it takes some getting used to. Essentially my hope is that it will stabilise his balance and make him less worried about tipping over and falling. Which, to our horror, has happened a few times, and it makes me writhe with guilt for not having supported him properly. But it's only a matter of letting go of his arm for maybe a second, to bend and pick up something, or to open a door, or to turn around.


Last week we finally sold our house. Not obtaining the price we hoped for, but well… It's a burden off our shoulders. So now it's finally time to move to the new flat, with everything on one level, one of the bathrooms en suite with the master bedroom, which will be just a few steps away from my husband's bedside. One more step in the bathroom and he'll be in the shower! Oh, it'll make things so much easier for him! And for me too, being his "left hand and foot."







We actually took over the flat formally on the 16th September, and these are the photos I took that day. We went through every little fault that should have been corrected since our previous inspection in June. On both occasions we brought with us our friend Per, who's an engineer and builder and an expert on these things, and I honestly don't know what I would have done without him. He discovered everything from the most minute irregularities to the graver ones - on walls, window sills, floors, kitchen fronts, bathroom tiles, doors - in paint structure, in mouldings, skirting, grouting. The builders walked around sticking blue tape on the imperfections, and by the time we left there was a definite aura of blue throughout the rooms… And with Per's photographic memory it was necessary to have him there on the second - and final - inspection, and for sure - up with some of the blue tape again!

Picnic basket on kitchen counter

The sales representative had brought with her a picnic basket to the take-over, and I had a hard time figuring out why. Picnic on the new balcony? Her idea of a practical handbag? Well, as soon as the papers were signed she pulled out the contents - two champagne glasses, a bottle of….. not champagne but apple juice! And a toilet roll. "This is your welcome gift from us!" Hmmm, well… one can never own enough picnic baskets, I suppose.





Our house is bursting with beautiful flowers from friends and family on the occasion of my husband's birthday, and in the midst of it all there suddenly arrived a gift for me too! With my daughter Julie's return from Australia - which was of course the greatest gift of all - there was a "pamper pack" from her mother-in-law Kim. The absolutely fantastic and gorgeous Kim became my soulmate during the four days (four days? It seemed more like four weeks!) that we worked together before, on and after the wedding in July. We became a team from the minute we met, and pulled together - with all the others too of course - towards the one goal of making this wedding THE event of the century. I will claim forever that for as much as the rest of the family also put in their greatest efforts, the two Big Mamas won first prize in organisation and logistics! 

Can't wait to start on the book - the other pamper stuff has already been tried!


Had my hair cut! Quite a bit!

As usual I'm trying - and succeeding, I think - in finding some joy in the little things in life. Although I'm pretty exhausted and sorrowful, there is so much to be happy about. The house burden is gone, though I'll be terribly upset to leave my home of the last thirty-one years. But I adjust easily to a new environment, and the important thing is having my loved ones around me. Home is where the heart is, definitely. 

I will always cherish the atmosphere in my living room this afternoon. Four of us - two daughters, my husband and I just sat around chatting, joking, laughing, planning. I was knitting, one daughter was writing thank you cards for wedding gifts, the other one was practising her card dealing skills while watching instruction films on Youtube. My husband was so much a part of the conversation. 

There certainly is nothing wrong with his mind. 



Monday 3 November 2014

BLACK IS BLACK

 

"I can't stand the rain against my window…" - a song by Ann Peebles, but one which I associate with Tina Turner. 

Well, it's not entirely true. I really don't mind the rain, as long as it doesn't go on for ages. It can be quite soothing actually, and not least cosy. The above photo, taken through my window from the inside, shows my living room mirror inverted. We always look forward to building a fire in our fireplace, but the weather is too warm at the moment! November with 11-12 degrees, well… Though I do recall the weather the week after my daughter Julie was born on the 28th November 1986... You are not supposed to take newborn babies outside into winter temperatures because it can be bad for their lungs, but the weather that November and December was glorious - according to my standards anyway because I hate the snow and cold - and we wrapped her up in the pram and took her for walks immediately. It was like an Indian Summer!



Today was All Saints Day, and we bought wreaths and candles and trudged off through the rain to our parents' graves. Me pushing my husband in the wheelchair over the deep though beautiful red gravel paths of the cemetery - and wow, what a physical challenge! This wheelchair is on loan from the district council, and we're waiting for the "real" one (ordered a month ago). I'll make sure I phone them tomorrow to ask them to place a small motor device on it!

An eventful week has just come to an end. Just before last weekend my husband started complaining about pains in his left side, vaguely explaining them as stabbing into his lung, his shoulder, his chest. I was definitely not accommodating - "this is probably just a pulled muscle, you've been lying in bed too long, blah blah…" Besides, Sunday was the day he really started hurting and wanted to see a doctor, and it just wasn't convenient for all our plans that day, also considering it wasn't a weekday, so that meant less people on call in every hospital or emergency room. I convinced him to wait, as we were due to see the cancer doctor on Wednesday anyway.

Oh, my black black conscience!

Knitting at hospital bedside, a relaxing pastime for hours

On Monday morning I awoke with an obvious and sudden thought: Blood clot! Embolism! It simply dawned on me that his symptoms reminded me of the ones he had thirty years ago, when he had a blood clot in his lung after knee surgery. And he'd thought the same.

Phone call to hospital, off after quick breakfast, admission to emergency examination ward, LOTS of tests, blood tests showing infection, lung scans, and yes. Embolism - blood clot in his lung and early pneumonia. Hospitalised for two days.

Hospital meal for me from the kiosk in the foyer - the saltiest and driest omelet I've ever tasted. You can actually see the dry crust here...

What's wrong with my judgment? My trivialisation of a very ill man's pains? My authority phobia? Because that's what it is - I'm basically scared of people in scrubs, or in uniform, or in authority positions of any kind! Afraid of teachers, police, customs (well, that's more natural perhaps). My daughters will tell you that if I'm ever stopped by police in a traffic control I'm immediately guilty as hell. Whatever they'll accuse me of - speeding, drunk driving, car faults - I'll admit to everything easily! Present them both my wrists and ask to be jailed. Arrest me! I've done it all!

And it certainly didn't help when a friend of my husband's called and said: "Oh no. You shouldn't have handled it this way. Never hesitate! Contact the doctor immediately"! Yes please. Do rub it in.

So I didn't want to bother the hospital staff. Even with a husband who's got the worst diagnosis ever. I learnt something this week, and that's a good thing. I learnt not to excuse myself to people in scrubs. Hah! Besides they are all younger than me! The doctor who admitted my husband had long red curls and huge tattoos. What age could he have been? 28 perhaps? I'll deal with the police next!

Bryan Ferry - dancing with hand on thigh. Like all older men do.

Thinking back on this somewhat traumatic week - my husband was released after two days in hospital AND told everything was discovered at an early stage and there was no real danger - I see that I've had a good time after all. Fantastic shellfish meal at sister Kari's house last Saturday - and her delicious sauces are the best! Relaxed and warm atmosphere with those closest to my heart. Bryan Ferry in concert a week ago with good friends (and Dim Sum first - which I love)! Tea and talk on Wednesday with sweet neighbour Lone, school Mum in Sophie's class (though ages ago now), then an unexpected visit and beautiful flowers from old friend Tonje on Friday - we gave birth to our first-borns within hours of each other on the same snowy December night in 1983. That's how we met and became friends! Last night there was dinner with two of my very best friends Anne-Helene and Unni, and we talked and laughed until... well….. None of us looked at the clock…. I'd arranged for two mates of my husband's to stay with him while I was at dinner, and I'd cooked for them and made sure there was enough tonic water in the house for their GTs. What more could they ask for?


Always soothing - "walkin' and talkin" in the Park with best friend Grete

Scary granddaughter Jelena and friend Frances on Halloween night - they won first prize in the contest! 




What I really wanted to say tonight is this: Black conscience or not, traumas or no traumas, ups and downs, rain or shine. I love my friends. I appreciate immensely all the support I get and I revel in a "like" or a comment on Facebook, or a message behind the FB wall. I indulge in sympathising emails, I take great pleasure in every comforting word and feedback. You should know - all of you - that it helps me make it through the night. Or the day for that matter. I honestly don't know where I would have been without you. And I relay it all - well nearly all - to my husband.